A Life Unchosen

I spent an afternoon in nature, with my unborn daughter, a month before she would be born, thinking about the 8 months that we’d been together and the lifetimes that lay before us. Thinking about the effort that went in to growing a healthy human and all that would go into raising her. The physical,… Continue reading A Life Unchosen

Narcolepsy and Pregnancy: My Story

This post has been a long time coming! After presenting this week at #SLEEP2022 as part of the panel "Narcolepsy and Pregnancy: Elevating Patient and Clinician Voices to Explore Best Practices and Shared Decision-Making", I think I finally have things organized in my head in a way that is relatively easily digestible - so what… Continue reading Narcolepsy and Pregnancy: My Story

Xyrem Vol. 6: One Year

I took my first dose of Xyrem 365 days ago TODAY.  Am I better? YES! Am i still sleepy? Yes.  About 2 months ago the reality of my narcolepsy set in: managing my sleepiness is, and always will be, something I work at every single day.  You might think - “Well, yeah. You have narcolepsy. … Continue reading Xyrem Vol. 6: One Year

Community and Connection in Chronic Illness

Happy Tuesday, friends! I'm trying to get into a Tuesday/Thursday/Saturday publishing cycle, instead of posting at random times throughout the week. This is the second post in that effort. Do you have your people? The ones who help you reset and keep things in perspective? Over the weekend I went to my first narcolepsy support… Continue reading Community and Connection in Chronic Illness