This post has been a long time coming! After presenting this week at #SLEEP2022 as part of the panel "Narcolepsy and Pregnancy: Elevating Patient and Clinician Voices to Explore Best Practices and Shared Decision-Making", I think I finally have things organized in my head in a way that is relatively easily digestible - so what… Continue reading Narcolepsy and Pregnancy: My Story
Happy New Year! Each year I choose a word. A word to guide me in finding joy, to aid in overcoming anxiety, and to turn to in moments when I just need to find my way back into myself. Last year my word was patience - patience waiting for the vaccine, patience with my body… Continue reading Word of the Year 2022
I took my first dose of Xyrem 365 days ago TODAY. Am I better? YES! Am i still sleepy? Yes. About 2 months ago the reality of my narcolepsy set in: managing my sleepiness is, and always will be, something I work at every single day. You might think - “Well, yeah. You have narcolepsy. … Continue reading Xyrem Vol. 6: One Year
Happy Tuesday, friends! I'm trying to get into a Tuesday/Thursday/Saturday publishing cycle, instead of posting at random times throughout the week. This is the second post in that effort. Do you have your people? The ones who help you reset and keep things in perspective? Over the weekend I went to my first narcolepsy support… Continue reading Community and Connection in Chronic Illness
You know that feeling when you've been in the house for two weeks hibernating from a frozen bomb cyclone tundra and you haven't had the sun on your skin and you start feeling off but you don't know why? And then your BFFLS come to visit and you go on a fabulous snowy beach walk… Continue reading A Snowy Beach Walk and Other Tools to Battle the Winter Blues
Michelle Turtora Zagardo 