Narcolepsy, chronic illness, and mental illness suck. Below are some of the things that make my life easier, better, and more comfortable. These are great for narcolepsy/cataplexy and maybe good for other chronic illnesses, too? Comment below with your favorite products that we need to know about to live a more full life while battling… Continue reading Narcolepsy Product Guide
This is something I posted on Instagram (@curioussparkledirt) one week ago and I want to share it here. Today my amazing husband helped me clean out my grad school office. And then dealt with me afterwards. Nothing makes a person grumpy quite like returning to the shrine of their undiagnosed neurological disease. You might be… Continue reading Cleaning Out My Office
I don't look this cute right now and I'm not smiling because I'm frustrated with my body for not letting me to do what I want to do. So why am I posting this photo? I'm trying to channel this girl's happiness, self acceptance, and peace with her diagnosis. The girl in this photo is… Continue reading It’s okay to not be okay
May is Mental Health Awareness Month and below is my number one tip for being helpful if your friend opens up to you about something: After showing your concern, ask your friend what their experience of whatever the label is that they tell you about. The people who know me and have seen my life… Continue reading Mental Health Awareness Tips
Let's talk about my first week on Xyrem. The cliff notes version is that I LOVE THIS DRUG. I think it's absolutely amazing and I hope that everyone who is interested in it can have access to it. I have a long way to go in my Xyrem journey but after two weeks there is… Continue reading Xyrem Vol. 1
This is us these days. 