I've been working on a blog post about narcolepsy and pregnancy for like...since the week we got a positive pregnancy test. Is this a topic that y'all are interested in? Is there something you'd like me to tackle first? Pre-conception? Pregnancy? Postpartum? I would love to know. (And if pregnancy with narcolepsy isn't for you… Continue reading Narcolepsy and Pregnancy
I took my first dose of Xyrem 365 days ago TODAY. Am I better? YES! Am i still sleepy? Yes. About 2 months ago the reality of my narcolepsy set in: managing my sleepiness is, and always will be, something I work at every single day. You might think - “Well, yeah. You have narcolepsy. … Continue reading Xyrem Vol. 6: One Year
Happy Tuesday, friends! I'm trying to get into a Tuesday/Thursday/Saturday publishing cycle, instead of posting at random times throughout the week. This is the second post in that effort. Do you have your people? The ones who help you reset and keep things in perspective? Over the weekend I went to my first narcolepsy support… Continue reading Community and Connection in Chronic Illness
SLEEP&SPARKLE is my life right now. I'm trying to build my brand and grow my company into something fabulous. I've cut down on writing over here because I worry that posts about work will be perceived as all self-promotion-y. Where do these voices come from? Who says that? It finally occurred to me (I can… Continue reading Half Birthday
Head burns, stomach aches, But nightly you give me sleep. Thank god I forget.
This is us these days. 