Cleaning Out My Office

This is something I posted on Instagram (@curioussparkledirt) one week ago and I want to share it here. Today my amazing husband helped me clean out my grad school office. And then dealt with me afterwards. Nothing makes a person grumpy quite like returning to the shrine of their undiagnosed neurological disease. You might be… Continue reading Cleaning Out My Office

The Misty Bear and Nimbus Lifestyle Hostel for People Who Have Morning Hands and Other People Who Have Weird Things Too

Happy Sleepy Saturday.  Today I have an exciting announcement! The community you've been dreaming about is finally here. I'm thrilled to announce that Misty Bear, Nimbus and I are expanding our lifestyle hostel! Are you jealous of your cat? Do you wish you could sleep whenever and wherever you want without feeling shame and guilt? Do you… Continue reading The Misty Bear and Nimbus Lifestyle Hostel for People Who Have Morning Hands and Other People Who Have Weird Things Too

It’s okay to not be okay

I don't look this cute right now and I'm not smiling because I'm frustrated with my body for not letting me to do what I want to do. So why am I posting this photo? I'm trying to channel this girl's happiness, self acceptance, and peace with her diagnosis. The girl in this photo is… Continue reading It’s okay to not be okay

Sleep Awareness Saturday

I recently started a narcolepsy miracle drug called Xyrem and I will vouch for it being the most amazing drug in the world. Scientists don't know a ton about how it works but there is some evidence to suggest that it acts like the neurons that are missing in my brain to help me get… Continue reading Sleep Awareness Saturday