Narcolepsy and Pregnancy: My Story

This post has been a long time coming! After presenting this week at #SLEEP2022 as part of the panel "Narcolepsy and Pregnancy: Elevating Patient and Clinician Voices to Explore Best Practices and Shared Decision-Making", I think I finally have things organized in my head in a way that is relatively easily digestible - so what… Continue reading Narcolepsy and Pregnancy: My Story

Prepping for Baby Pt 1: Narcolepsy and Pregnancy

One of the hardest things about pregnancy and postpartum with chronic illness was all of the uncertainty about how my body would respond to the whole process. Here are a few things that I did that helped me (and Darrell) feel as prepared as we possibly could be. While the first two items might be illness specific, I think the rest are just good practice for this life transition!

Narcolepsy and Pregnancy

I've been working on a blog post about narcolepsy and pregnancy for like...since the week we got a positive pregnancy test. Is this a topic that y'all are interested in? Is there something you'd like me to tackle first? Pre-conception? Pregnancy? Postpartum? I would love to know. (And if pregnancy with narcolepsy isn't for you… Continue reading Narcolepsy and Pregnancy

Xyrem Vol. 6: One Year

I took my first dose of Xyrem 365 days ago TODAY.  Am I better? YES! Am i still sleepy? Yes.  About 2 months ago the reality of my narcolepsy set in: managing my sleepiness is, and always will be, something I work at every single day.  You might think - “Well, yeah. You have narcolepsy. … Continue reading Xyrem Vol. 6: One Year

Community and Connection in Chronic Illness

Happy Tuesday, friends! I'm trying to get into a Tuesday/Thursday/Saturday publishing cycle, instead of posting at random times throughout the week. This is the second post in that effort. Do you have your people? The ones who help you reset and keep things in perspective? Over the weekend I went to my first narcolepsy support… Continue reading Community and Connection in Chronic Illness