There's a new and exciting sleep-related TEDx talk out so here's a bunch of sleep-disorder related resources I want you to have!
Sleep Health Resource Guide
Tag: cataplexy
Narcolepsy and Pregnancy: My Story
This post has been a long time coming! After presenting this week at #SLEEP2022 as part of the panel "Narcolepsy and Pregnancy: Elevating Patient and Clinician Voices to Explore Best Practices and Shared Decision-Making", I think I finally have things organized in my head in a way that is relatively easily digestible - so what… Continue reading Narcolepsy and Pregnancy: My Story
Prepping for Baby Pt 1: Narcolepsy and Pregnancy
One of the hardest things about pregnancy and postpartum with chronic illness was all of the uncertainty about how my body would respond to the whole process. Here are a few things that I did that helped me (and Darrell) feel as prepared as we possibly could be. While the first two items might be illness specific, I think the rest are just good practice for this life transition!
Narcolepsy and Pregnancy
I've been working on a blog post about narcolepsy and pregnancy for like...since the week we got a positive pregnancy test. Is this a topic that y'all are interested in? Is there something you'd like me to tackle first? Pre-conception? Pregnancy? Postpartum? I would love to know. (And if pregnancy with narcolepsy isn't for you… Continue reading Narcolepsy and Pregnancy
Xyrem Vol. 6: One Year
I took my first dose of Xyrem 365 days ago TODAY. Am I better? YES! Am i still sleepy? Yes. About 2 months ago the reality of my narcolepsy set in: managing my sleepiness is, and always will be, something I work at every single day. You might think - “Well, yeah. You have narcolepsy. … Continue reading Xyrem Vol. 6: One Year
This is us these days. 