Happy Tuesday, friends! I'm trying to get into a Tuesday/Thursday/Saturday publishing cycle, instead of posting at random times throughout the week. This is the second post in that effort. Do you have your people? The ones who help you reset and keep things in perspective? Over the weekend I went to my first narcolepsy support… Continue reading Community and Connection in Chronic Illness
“A hallucination is a fact not an error; what is erroneous is a judgment based upon it.” -Bertrand Russell #tbt to #Cologne in May. I was rounding out my first month on Xyrem and experiencing (relatively) dreamless, restorative sleep for the first time in my life. The hallucinations only started disappearing more recently. Before diagnosis… Continue reading On Hallucinations
Head burns, stomach aches, But nightly you give me sleep. Thank god I forget.
Did you know that ADD/ADHD, depression, bipolar disorder, schizophrenia, "laziness", and just general excessive daytime sleepiness are common misdiagnoses for sleep disorders like narcolepsy, sleep apnea, restless leg syndrome, and so many more? Sleep disorders are a lot more subtle than a person falling asleep in the middle of a conversation, despite what we see… Continue reading How sleepy are you?
Welcome to the Xyrem diaries where I share my experience taking the narcolepsy wonder drug Xyrem and subsequently waking up to life for the first time. These posts are a bit more technical and not necessarily meant for people unfamiliar with the medication, unless you've been specifically following my Xyrem journey (From AIP Paleo to… Continue reading Xyrem Vol. 4
This is us these days. 