Happy Tuesday, friends! I'm trying to get into a Tuesday/Thursday/Saturday publishing cycle, instead of posting at random times throughout the week. This is the second post in that effort. Do you have your people? The ones who help you reset and keep things in perspective? Over the weekend I went to my first narcolepsy support… Continue reading Community and Connection in Chronic Illness
Welcome to the Xyrem diaries where I share my experience taking the narcolepsy wonder drug Xyrem and subsequently waking up to life for the first time. These posts are a bit more technical and not necessarily meant for people unfamiliar with the medication, unless you've been specifically following my Xyrem journey (From AIP Paleo to… Continue reading Xyrem Vol. 4
Julie Flygare is my #womancrushwednesday! Check out her episode on the @arinuplifted podcast where she talks all about...NARCOLEPSY...here! (Photo via @remrunner.) Trigger warning: eating disorders. With a heaping side of bitterness. It took me a while to process this interview because it's heavy on the food and exercise talk. You see, food and I have… Continue reading Food and Narcolepsy
I'm slowly learning how bad my cataplexy is. Apparently most people don't have trouble drinking out of a normal water bottle? And don't work to stay standing or to keep their head up when they laugh? These are things I've dealt with my whole life and had no idea they weren't normal. I just thought… Continue reading Concerts are fun?