When You “Wake” Me Up

It’s SLEEPY CATURDAY so it’s time to pull out another cat post from my drafts folder! ICYMI my cat posts run deep.  Without further ado here is me as a cat “waking up”.  Keep an eye on the cat on the right, Misty Bear.

This is what I look like when I’m “waking up”.  I think I look awake. I’ll tell you I’m about to wake up. I’ll say “just give me 7 minutes.”  Friends, this person is not awake and they are NOT waking up.  If a person with narcolepsy tells you they’re waking up you shouldn’t believe them. Or at least you shouldn’t believe them any more than you believe them when they tell you to move out of the way of the unicorn/tarantula/”insert narcoleptic hallucination here” that is in the corner.  Because they are going back to sleep just as quickly as…wait they never woke up.

The best way to wake up a person with narcolepsy is…I have no idea.  Unmedicated I can’t get out of bed.  It’s almost physically impossible because my brain has nothing going for it and it won’t stop REMming.  My best bet is 17 hours of sleep, half a liter of water, and a light lamp.  When I was taking stimulants, I would set my alarm for 1 hour before I needed to be out of bed so that they would have time to kick in and then I could groggily and sleepily go about my day.  Now on Xyrem I actually wake up more easily than I ever did before.  Getting out of bed is still my least favorite part of the day, but when I wake up I feel like I’m actually conscious more often than not.

Before Xyrem?  Misty Bear and I were one.

Do you have any recommendations for PWN who are not taking medication?

“I had a snac(k)cident.”

snac(k)cident: when one eats after starting the two hour xyrem post-meal countdown clock. "I stopped eating at 8 so I had a 10pm xyrem time. But I saw the crackers when I got home and before I knew it I had a snackcident! New xyrem time? 11pm 😭."


(Image from http://www.urbantastebud.com.)

Xyrem is a drug that people with narcolepsy take to help us achieve the restorative sleep that we can't get on our own. One frustrating thing about xyrem is that you can't take it within two hours of eating. And I seem to sleep better when it's actually closer to 3 hours after eating. There were snacks out on the table when we got back from dinner tonight and the first thing I did was put the snacks away to prevent myself from mindlessly eating and resetting my xyrem clock. Which is when my brilliant husband coined the term snack-cident, for when you accidentally snack while counting down to xyrem time.

I am thrilled to say I've never had a snackcident to date. But I have had close calls where I end up biting into food and spitting it out after realizing what I've done. Pretty awesome, right? *rolls eyes*

In the grand scheme of things though, snackcidents are a small price to pay for sleeping at night, fewer dreams, fewer hallucinations, increased wakefulness, and …

Perspective on the Patio

We stayed at the Fraser Highlands resort in New Zealand while we were exploring Abel Tasman park.  Sketching the table and trellis was another lesson in perspective and parallel lines.  Parallel lines are kicking my ass!

M draws table, trellis, and BBQ.
D draws glass of wine and water bottle.