I took my first dose of Xyrem 365 days ago TODAY. Am I better? YES! Am i still sleepy? Yes. About 2 months ago the reality of my narcolepsy set in: managing my sleepiness is, and always will be, something I work at every single day. You might think - “Well, yeah. You have narcolepsy. … Continue reading Xyrem Vol. 6: One Year
Tag: chronic illness
March for Our Lives
This week's Bear Bulletin is postponed due to the March for Our Lives. I am eager to share photos from Austin, and interested in hearing your experiences at marches around the country. To be honest, this is the first march I went to, I stayed for an hour to take photos, and I missed the speeches. Marching… Continue reading March for Our Lives
Community and Connection in Chronic Illness
Happy Tuesday, friends! I'm trying to get into a Tuesday/Thursday/Saturday publishing cycle, instead of posting at random times throughout the week. This is the second post in that effort. Do you have your people? The ones who help you reset and keep things in perspective? Over the weekend I went to my first narcolepsy support… Continue reading Community and Connection in Chronic Illness
Half Birthday
SLEEP&SPARKLE is my life right now. I'm trying to build my brand and grow my company into something fabulous. I've cut down on writing over here because I worry that posts about work will be perceived as all self-promotion-y. Where do these voices come from? Who says that? It finally occurred to me (I can… Continue reading Half Birthday
How have you changed this year?
I was substitute teaching last week and the principal challenged the students to think about how they've changed during the school year. I beat myself up a lot for not getting "enough" done, etc., but when I started to reflect on his questions I realized that I've done a lot more this past year than I give myself credit… Continue reading How have you changed this year?
This is us these days. 