This post has been a long time coming! After presenting this week at #SLEEP2022 as part of the panel "Narcolepsy and Pregnancy: Elevating Patient and Clinician Voices to Explore Best Practices and Shared Decision-Making", I think I finally have things organized in my head in a way that is relatively easily digestible - so what… Continue reading Narcolepsy and Pregnancy: My Story
“A hallucination is a fact not an error; what is erroneous is a judgment based upon it.” -Bertrand Russell #tbt to #Cologne in May. I was rounding out my first month on Xyrem and experiencing (relatively) dreamless, restorative sleep for the first time in my life. The hallucinations only started disappearing more recently. Before diagnosis… Continue reading On Hallucinations
Head burns, stomach aches, But nightly you give me sleep. Thank god I forget.
Julie Flygare is my #womancrushwednesday! Check out her episode on the @arinuplifted podcast where she talks all about...NARCOLEPSY...here! (Photo via @remrunner.) Trigger warning: eating disorders. With a heaping side of bitterness. It took me a while to process this interview because it's heavy on the food and exercise talk. You see, food and I have… Continue reading Food and Narcolepsy
I'm slowly learning how bad my cataplexy is. Apparently most people don't have trouble drinking out of a normal water bottle? And don't work to stay standing or to keep their head up when they laugh? These are things I've dealt with my whole life and had no idea they weren't normal. I just thought… Continue reading Concerts are fun?
This is us these days. 