“A hallucination is a fact not an error; what is erroneous is a judgment based upon it.” -Bertrand Russell #tbt to #Cologne in May. I was rounding out my first month on Xyrem and experiencing (relatively) dreamless, restorative sleep for the first time in my life. The hallucinations only started disappearing more recently. Before diagnosis… Continue reading On Hallucinations
Julie Flygare is my #womancrushwednesday! Check out her episode on the @arinuplifted podcast where she talks all about...NARCOLEPSY...here! (Photo via @remrunner.) Trigger warning: eating disorders. With a heaping side of bitterness. It took me a while to process this interview because it's heavy on the food and exercise talk. You see, food and I have… Continue reading Food and Narcolepsy
I'm slowly learning how bad my cataplexy is. Apparently most people don't have trouble drinking out of a normal water bottle? And don't work to stay standing or to keep their head up when they laugh? These are things I've dealt with my whole life and had no idea they weren't normal. I just thought… Continue reading Concerts are fun?
snac(k)cident: when one eats after starting the two hour xyrem post-meal countdown clock. "I stopped eating at 8 so I had a 10pm xyrem time. But I saw the crackers when I got home and before I knew it I had a snackcident! New xyrem time? 11pm 😭."(Image from http://www.urbantastebud.com.)Xyrem is a drug that people… Continue reading “I had a snac(k)cident.”