Happy Tuesday, friends! I'm trying to get into a Tuesday/Thursday/Saturday publishing cycle, instead of posting at random times throughout the week. This is the second post in that effort. Do you have your people? The ones who help you reset and keep things in perspective? Over the weekend I went to my first narcolepsy support… Continue reading Community and Connection in Chronic Illness
"If you can't fly then run, if you can't run then walk, if you can't walk then crawl, but whatever you do you have to keep moving forward." -Martin Luther King, Jr. Flashback to January 2017. I knew I wanted to start a blog and I knew that my first post was going to be… Continue reading One Year of curious sparkle dirt
You know that feeling when you've been in the house for two weeks hibernating from a frozen bomb cyclone tundra and you haven't had the sun on your skin and you start feeling off but you don't know why? And then your BFFLS come to visit and you go on a fabulous snowy beach walk… Continue reading A Snowy Beach Walk and Other Tools to Battle the Winter Blues
Another reason why people stop posting about their Xyrem journeys? Side effects. Just a thought.Read Xyrem Vol 2.
There are so many narcolepsy blogs and vlogs where people track their Xyrem experience and I'm starting to understand why they all start out with such vim and vigor and trail off after a few months: it's because the person is waking up and living life! Instead of sleeping all day and blogging/vlogging in between,… Continue reading Xyrem Vol. 2
This is us these days. 