Where is the strangest place that you've ever slept? Was it on purpose? / What was your motivation? Neurotypicals: your responses are welcomed! There's a photo somewhere of me sleeping on a bus my first year in college. It was late at night, we were coming back from a co-ed school and I was… Continue reading Where have you slept?
Narcolepsy, chronic illness, and mental illness suck. Below are some of the things that make my life easier, better, and more comfortable. These are great for narcolepsy/cataplexy and maybe good for other chronic illnesses, too? Comment below with your favorite products that we need to know about to live a more full life while battling… Continue reading Narcolepsy Product Guide
This is something I posted on Instagram (@curioussparkledirt) one week ago and I want to share it here. Today my amazing husband helped me clean out my grad school office. And then dealt with me afterwards. Nothing makes a person grumpy quite like returning to the shrine of their undiagnosed neurological disease. You might be… Continue reading Cleaning Out My Office
Before leaving the appointment my medical chart changed forever. I got a clean bill of mental health in exchange for a neurological disease as my neurologist struck a line through “depression”, “anxiety”, and “ADHD” and wrote “narcolepsy with cataplexy”. We would revisit those diagnoses later, but until proven otherwise, he explained, those were all misdiagnoses for narcolepsy. I felt like the weight of the world was taken off my shoulders that day. I felt the relief of finally being SEEN by the medical profession for the first time in my life. And, wait for it, the relief at not having a mental illness. Yes. I would rather have a neurological disease than a mental illness, even though the symptoms can manifest in similar ways. Our society viewed me as “crazy” before my narcolepsy diagnosis, and “sick” after the diagnosis. Why?