I'm slowly learning how bad my cataplexy is. Apparently most people don't have trouble drinking out of a normal water bottle? And don't work to stay standing or to keep their head up when they laugh? These are things I've dealt with my whole life and had no idea they weren't normal. I just thought… Continue reading Concerts are fun?
snac(k)cident: when one eats after starting the two hour xyrem post-meal countdown clock. "I stopped eating at 8 so I had a 10pm xyrem time. But I saw the crackers when I got home and before I knew it I had a snackcident! New xyrem time? 11pm 😭."(Image from http://www.urbantastebud.com.)Xyrem is a drug that people… Continue reading “I had a snac(k)cident.”
Another reason why people stop posting about their Xyrem journeys? Side effects. Just a thought.Read Xyrem Vol 2.
Where is the strangest place that you've ever slept? Was it on purpose? / What was your motivation? Neurotypicals: your responses are welcomed! There's a photo somewhere of me sleeping on a bus my first year in college. It was late at night, we were coming back from a co-ed school and I was… Continue reading Where have you slept?
There are so many narcolepsy blogs and vlogs where people track their Xyrem experience and I'm starting to understand why they all start out with such vim and vigor and trail off after a few months: it's because the person is waking up and living life! Instead of sleeping all day and blogging/vlogging in between,… Continue reading Xyrem Vol. 2
This is us these days. 