Head burns, stomach aches, But nightly you give me sleep. Thank god I forget.
Julie Flygare is my #womancrushwednesday! Check out her episode on the @arinuplifted podcast where she talks all about...NARCOLEPSY...here! (Photo via @remrunner.) Trigger warning: eating disorders. With a heaping side of bitterness. It took me a while to process this interview because it's heavy on the food and exercise talk. You see, food and I have… Continue reading Food and Narcolepsy
There are so many narcolepsy blogs and vlogs where people track their Xyrem experience and I'm starting to understand why they all start out with such vim and vigor and trail off after a few months: it's because the person is waking up and living life! Instead of sleeping all day and blogging/vlogging in between,… Continue reading Xyrem Vol. 2
Happy Sleepy Saturday. Today I have an exciting announcement! The community you've been dreaming about is finally here. I'm thrilled to announce that Misty Bear, Nimbus and I are expanding our lifestyle hostel! Are you jealous of your cat? Do you wish you could sleep whenever and wherever you want without feeling shame and guilt? Do you… Continue reading The Misty Bear and Nimbus Lifestyle Hostel for People Who Have Morning Hands and Other People Who Have Weird Things Too
I don't look this cute right now and I'm not smiling because I'm frustrated with my body for not letting me to do what I want to do. So why am I posting this photo? I'm trying to channel this girl's happiness, self acceptance, and peace with her diagnosis. The girl in this photo is… Continue reading It’s okay to not be okay