I took my first dose of Xyrem 365 days ago TODAY. Am I better? YES! Am i still sleepy? Yes. About 2 months ago the reality of my narcolepsy set in: managing my sleepiness is, and always will be, something I work at every single day. You might think - “Well, yeah. You have narcolepsy. … Continue reading Xyrem Vol. 6: One Year
Tag: narcolepsy awareness
The Misty Bear and Nimbus Lifestyle Hostel for People Who Have Morning Hands and Other People Who Have Weird Things Too
Happy Sleepy Saturday. Today I have an exciting announcement! The community you've been dreaming about is finally here. I'm thrilled to announce that Misty Bear, Nimbus and I are expanding our lifestyle hostel! Are you jealous of your cat? Do you wish you could sleep whenever and wherever you want without feeling shame and guilt? Do you… Continue reading The Misty Bear and Nimbus Lifestyle Hostel for People Who Have Morning Hands and Other People Who Have Weird Things Too
Xyrem Vol. 1
Let's talk about my first week on Xyrem. The cliff notes version is that I LOVE THIS DRUG. I think it's absolutely amazing and I hope that everyone who is interested in it can have access to it. I have a long way to go in my Xyrem journey but after two weeks there is… Continue reading Xyrem Vol. 1
The Fantastic 4-4-4: My grad school success plan
Please enjoy these photos of sleepy kittens while I express my frustration with my psychiatrist. I saw my psychiatrist today for the first time since my narcolepsy type 1 diagnosis. I knew what her reaction was going to be when I told her and I should have put on my big girl pants and gotten ready for it but… Continue reading The Fantastic 4-4-4: My grad school success plan
From AIP Paleo to Crystal Light
If you had told me 5 years ago at the height of my Paleo neuroses that the key to getting my health under control wasn't kale and egg yolks but rather sodium oxybate and crystal light I woulda thought you were out of your damn mind. Wait. Actually I would have said "WTF you mean… Continue reading From AIP Paleo to Crystal Light
This is us these days. 