I took my first dose of Xyrem 365 days ago TODAY. Am I better? YES! Am i still sleepy? Yes. About 2 months ago the reality of my narcolepsy set in: managing my sleepiness is, and always will be, something I work at every single day. You might think - “Well, yeah. You have narcolepsy. … Continue reading Xyrem Vol. 6: One Year
Tag: narcolepsy not alone
Xyrem Vol. 1
Let's talk about my first week on Xyrem. The cliff notes version is that I LOVE THIS DRUG. I think it's absolutely amazing and I hope that everyone who is interested in it can have access to it. I have a long way to go in my Xyrem journey but after two weeks there is… Continue reading Xyrem Vol. 1
This is us these days. 