I took my first dose of Xyrem 365 days ago TODAY. Am I better? YES! Am i still sleepy? Yes. About 2 months ago the reality of my narcolepsy set in: managing my sleepiness is, and always will be, something I work at every single day. You might think - “Well, yeah. You have narcolepsy. … Continue reading Xyrem Vol. 6: One Year
Tag: narcolepsy princess
How have you changed this year?
I was substitute teaching last week and the principal challenged the students to think about how they've changed during the school year. I beat myself up a lot for not getting "enough" done, etc., but when I started to reflect on his questions I realized that I've done a lot more this past year than I give myself credit… Continue reading How have you changed this year?
New Orleans in photos
We went to New Orleans for our close friends' wedding! It was my first time and my husband's second. The weekend was full of adventures, time with friends, and so.much.food. Y'all the food is AMAZING. I highly recommend almost every place that we went; any exceptions are noted in the comments. Day 1 Day 2 Day… Continue reading New Orleans in photos
FRIDAY FRIDAY FRIDAY
I'm wishing I was back on this beach in New Zealand but a Friday is pretty nice too!
She Looks Awake
If you could see past my puffy, sleep-deprived face and meet me beyond the purgatory dreamland that's engulfed me as completely and as delicately as a spider web, you would find a woman who has lofty goals and ambitions, opinions and ideas, and yearns to not plan each day around horizontal surfaces. I stay hopeful that I can find my way back to "her" again tomorrow. Hopeful that we can meet up to live the life that we have planned for ourselves and be challenged by things that are bigger than sleep.
This is us these days. 