Xyrem Vol. 6: One Year

I took my first dose of Xyrem 365 days ago TODAY.  Am I better? YES! Am i still sleepy? Yes.  About 2 months ago the reality of my narcolepsy set in: managing my sleepiness is, and always will be, something I work at every single day.  You might think - “Well, yeah. You have narcolepsy. … Continue reading Xyrem Vol. 6: One Year

March for Our Lives

This week's Bear Bulletin is postponed due to the March for Our Lives.  I am eager to share photos from Austin, and interested in hearing your experiences at marches around the country. To be honest, this is the first march I went to, I stayed for an hour to take photos, and I missed the speeches. Marching… Continue reading March for Our Lives

Community and Connection in Chronic Illness

Happy Tuesday, friends! I'm trying to get into a Tuesday/Thursday/Saturday publishing cycle, instead of posting at random times throughout the week. This is the second post in that effort. Do you have your people? The ones who help you reset and keep things in perspective? Over the weekend I went to my first narcolepsy support… Continue reading Community and Connection in Chronic Illness

One Year of curious sparkle dirt

"If you can't fly then run, if you can't run then walk, if you can't walk then crawl, but whatever you do you have to keep moving forward." -Martin Luther King, Jr. Flashback to January 2017. I knew I wanted to start a blog and I knew that my first post was going to be… Continue reading One Year of curious sparkle dirt

My Word of the Year

Last Year 2017 was a year of adventure and abundant creativity, but also one of intense anger, confusion, and betrayal.  My New Year's Resolution was to reduce food waste and hell if that didn't fade out of view by the second grocery shopping trip of January. And then narcolepsy. I tried to fight against my… Continue reading My Word of the Year