Welcome to the Xyrem diaries where I share my experience taking the narcolepsy wonder drug Xyrem and subsequently waking up to life for the first time. These posts are a bit more technical and not necessarily meant for people unfamiliar with the medication, unless you've been specifically following my Xyrem journey (From AIP Paleo to… Continue reading Xyrem Vol. 4
Julie Flygare is my #womancrushwednesday! Check out her episode on the @arinuplifted podcast where she talks all about...NARCOLEPSY...here! (Photo via @remrunner.) Trigger warning: eating disorders. With a heaping side of bitterness. It took me a while to process this interview because it's heavy on the food and exercise talk. You see, food and I have… Continue reading Food and Narcolepsy
I'm slowly learning how bad my cataplexy is. Apparently most people don't have trouble drinking out of a normal water bottle? And don't work to stay standing or to keep their head up when they laugh? These are things I've dealt with my whole life and had no idea they weren't normal. I just thought… Continue reading Concerts are fun?
It's SLEEPY CATURDAY so it's time to pull out another cat post from my drafts folder! ICYMI my cat posts run deep. Without further ado here is me as a cat "waking up". Keep an eye on the cat on the right, Misty Bear. This is what I look like when I'm "waking up". I… Continue reading When You “Wake” Me Up
snac(k)cident: when one eats after starting the two hour xyrem post-meal countdown clock. "I stopped eating at 8 so I had a 10pm xyrem time. But I saw the crackers when I got home and before I knew it I had a snackcident! New xyrem time? 11pm 😭."(Image from http://www.urbantastebud.com.)Xyrem is a drug that people… Continue reading “I had a snac(k)cident.”
This is us these days. 