I spent an afternoon in nature, with my unborn daughter, a month before she would be born, thinking about the 8 months that we’d been together and the lifetimes that lay before us. Thinking about the effort that went in to growing a healthy human and all that would go into raising her. The physical,… Continue reading A Life Unchosen
This post has been a long time coming! After presenting this week at #SLEEP2022 as part of the panel "Narcolepsy and Pregnancy: Elevating Patient and Clinician Voices to Explore Best Practices and Shared Decision-Making", I think I finally have things organized in my head in a way that is relatively easily digestible - so what… Continue reading Narcolepsy and Pregnancy: My Story
One of the hardest things about pregnancy and postpartum with chronic illness was all of the uncertainty about how my body would respond to the whole process. Here are a few things that I did that helped me (and Darrell) feel as prepared as we possibly could be. While the first two items might be illness specific, I think the rest are just good practice for this life transition!
I've been working on a blog post about narcolepsy and pregnancy for like...since the week we got a positive pregnancy test. Is this a topic that y'all are interested in? Is there something you'd like me to tackle first? Pre-conception? Pregnancy? Postpartum? I would love to know. (And if pregnancy with narcolepsy isn't for you… Continue reading Narcolepsy and Pregnancy
I took my first dose of Xyrem 365 days ago TODAY. Am I better? YES! Am i still sleepy? Yes. About 2 months ago the reality of my narcolepsy set in: managing my sleepiness is, and always will be, something I work at every single day. You might think - “Well, yeah. You have narcolepsy. … Continue reading Xyrem Vol. 6: One Year