I took my first dose of Xyrem 365 days ago TODAY. Am I better? YES! Am i still sleepy? Yes. About 2 months ago the reality of my narcolepsy set in: managing my sleepiness is, and always will be, something I work at every single day. You might think - “Well, yeah. You have narcolepsy. … Continue reading Xyrem Vol. 6: One Year
Tag: xyrem
On Hallucinations
“A hallucination is a fact not an error; what is erroneous is a judgment based upon it.” -Bertrand Russell #tbt to #Cologne in May. I was rounding out my first month on Xyrem and experiencing (relatively) dreamless, restorative sleep for the first time in my life. The hallucinations only started disappearing more recently. Before diagnosis… Continue reading On Hallucinations
Half Birthday
SLEEP&SPARKLE is my life right now. I'm trying to build my brand and grow my company into something fabulous. I've cut down on writing over here because I worry that posts about work will be perceived as all self-promotion-y. Where do these voices come from? Who says that? It finally occurred to me (I can… Continue reading Half Birthday
Xyrem Vol. 5
Head burns, stomach aches, But nightly you give me sleep. Thank god I forget.
How sleepy are you?
Did you know that ADD/ADHD, depression, bipolar disorder, schizophrenia, "laziness", and just general excessive daytime sleepiness are common misdiagnoses for sleep disorders like narcolepsy, sleep apnea, restless leg syndrome, and so many more? Sleep disorders are a lot more subtle than a person falling asleep in the middle of a conversation, despite what we see… Continue reading How sleepy are you?
This is us these days. 